Eight-year-old Ava Barry is No Longer Subjected to Taking Pharmaceutical Drugs.
Eight-year-old Ava Barry has been granted access to medical marijuana, which is she uses to treat her rare form of epilepsy called Dravet Syndrome.
Dravet syndrome is also known as Severe Myoclonic Epilepsy of Infancy (SMEI) and is a rare and catastrophic form of intractable epilepsy that begins in infancy.
Vera Twomey, Ava’s mom, began a campaign, urging the Health Minister Simon Harris to allow her daughter access to medical marijuana after she received a drug made from a cannabis component.
Earlier this summer, she spoke in the House of Commons, highlighting the benefits of medicinal cannabis in treating severe cases of epilepsy.
After receiving the license permit that allowed Ava to use medical marijuana, she posted the news on Facebook.
“Ava has become officially pharma-free. We were scared and excited at the same time to know what it would bring. The last couple of photos of Ava I think speak for themselves and as it happens so does Ava as she is singing the beginning of nursery rhymes now more and more.”
“Happy and healthy as we can be we move forward better and brighter and looking forward to getting back to school.”
Instances of Similar Cases
During her campaign, Vera Twomey became friends with Alfie Dingley’s mom, Hannah Deacon.
Ms. Deacon is a British mother, who earlier this year led a similar campaign to obtain medical marijuana access for her son.
Both families live in the same neighborhood in the Netherlands. Twomey describes the families as “medical refugees”.
Twomey’s campaign is gathering momentum, as she recently climbed Croagh Patrick, which has been nicknamed the reef. She was accompanied by Noreen O’Neill, the mother of Michael, a two-year-old boy who has a neurological condition that causes violent seizures.
Noreen hopes to obtain a license for medicinal cannabis to treat her son’s condition.
Currently, consultants can apply to the Health Minister for a license on behalf of a patient.
However, many campaigners stated that this can be a difficult process, as being able to see a consultant is difficult.